We reran Alex's triglycerides yesterday morning, but unfortunately they did not come back yet. The GI team decided to go ahead and reduce his lipids to only 3 days/week instead of every day. I feel good about this decision since Alex's triglycerides have been consistently high since November despite lowering his amount numerous times.
We are still waiting on our return date to Houston.
A little more about our fundraiser... It is put on by the president of the Houston chapter of the UMDF who is a very good friend of Dr. Koenig's. She lost her little boy to mito several years ago. Dr. Koenig approached Jen and I about walking in this event. It is a 5K walk/run. It will take place in Houston on February 7th. Dr. Koenig will be working hard to get the boys out of the hospital for the morning so they can walk with us. Obviously this is a cause that is very close to our hearts. We are really excited about participating and are blown away by the generosity of you our friends andfamily!