Alex and Maddy

Alex and Maddy

Monday, January 5, 2009

I have had a rotten day! Every once in a while there is a day when I am just plain sick of all of this and today was one of those days.

Alex's port is once again not working correctly. Surgery came to look at it , but were not very helpful. We are going to once again TPA it to try and get blood, but that doesn't help me when we get home.

We are doing the MRCP tomorrow under general anesthesia. Hoping that gives us some answers about his pancreas.

GI was not very helpful at all today. There was a new GI on service and he wanted to try a bunch of different things that I don't agree with. Luckily for now we are holding off on most of these. Although they are going to mess with his TPN when I don't think they should.

We have two other concerns right now. Alex has been sleeping quite a bit the last 2 days and he seems to be retaining fluids, but we aren't sure now. We are trying to determine if he is getting sick again or if it is being caused by the pain meds he was taking for his pain.

We need some major prayers for Bruce and his job situation right now. The company Bruce went to work for was not honest about the pay structure. We just found out that it is not going to work out so he is once again looking for a job. Please keep your eyes and ears open and let us know if you hear of anything.

Al​i

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