Alex and Maddy

Alex and Maddy

Tuesday, October 31, 2017

Happy Birthday, Madelyn Paige!

As I woke up this morning I thought back four years to a Halloween that was nothing like I expected. On October 30th, 2013, I called my OB/GYN concerned because Maddy was not moving as she had been for most of my pregnancy. They asked me to come in the next morning at 9:00. When I arrived at the office they tried to stimulate Maddy to induce movement. When they could not get any movements they rushed me to the hospital to be induced. Madelyn arrived at 4:50 PM and changed our lives forever.
Oh my Maddy Moo....She was and is such a doll. She can be the sassiest, spunkiest, most strong willed little toot. By she has the sweetest heart. She is a nurturer and has a kindness unlike any other. I catch her all the time consoling friends who are crying. She is quick to cuddle and hug and say I love you. She loves her friends and her teachers, but it is her family she adores. She looks up to her big brother and wants so much to spend every waking moment with him. She loves to read, play dolls, play with her animals, play dress up and do arts and crafts. She loves to dance. She is Mommy's helper and loves all things girly. She is funny, god is she funny. She makes us laugh all...the...time! Her joy is infectious. She is such a Gift from God.

2013

2014

2015


2016






2017
My precious Madelyn Paige-
How very long we waited for you. Oh my sweet girl, you were so worth the wait. I love to watch the way you tackle life head on. Your personality is so much bigger then that little body. You are the most determined little girl. You are smart and independent, funny and stubborn, joyful and kind. You have so much love to give. Always go after your dreams with the same passion and perseverance you do now. Go into this world knowing you are a beloved child of god and spread your light to everyone you meet. I love you my more then you will ever know, Maddy-Moo!

Love,
Mommy

Saturday, October 28, 2017

A Mixed Bag

This week was a mix of good and bad.

I'll start with the bad. Both kids have been feeling pretty cruddy. Alex has had some of the worst pain, he's had this year. We are waiting on a procedure in November that should help and then we need to make decisions about a major surgery that would be more of a long term solution. I feel bad as we try to keep him engaged and participating in life when he'd rather lay in the bed all day. Maddy is complaining daily of stomach and leg pain. We are trying to get to the cause of her pain so we can help her feel better!

The good...We had some fun events this week as well. Maddy continues to thrive at school. She is so happy to be there. I am so grateful for there love and care for Mad. Alex participated in the Cook Children's Haunted House this week where patients participate in scaring not only other patients, but also doctors, nurses and staff. It is something he really looks forward to and enjoys. Yesterday we went to a VIP showing of the Fort Worth Air Show for the sixth year in a row. We always enjoy it and appreciate Make A Wish inviting us. It was a little less enjoyable yesterday as out temps dropped from 86 degrees on Thursday to 56 degrees yesterday! BRRRR!!!We were all freezing!

Maddy's School picture

My Sassy Pants

Hair Cut Day

Air Show

In the tent waiting to see the Blue Angels

Alex's version of trying to stay warm

Alex and Erin


Sibling Love




Air Show 2017

Pretty Girl

Trying to stay warm this morning!

Please continue to pray for these precious babies. Prayers that they will feel better and be able to enjoy all of the fun we have planned over the next week to celebrate Halloween and Maddy!

Ali

PS- Alex's Fundraiser has one more week. He is doing great, but would be grateful for any other donations to help Cook Children's Hospital! Link to donate

Friday, October 20, 2017

Grateful

As we went through this last week, I realized how grateful I am for all of the blessings in our lives. It was a pretty ordinary week around here, but I saw so much to be grateful for.

On Saturday, I saw the joy of siblings who love each other so much. A brother and sister ten years apart who find a way to play and have fun and support each other.

On Sunday, it was a church where we feel at home. Where the kids have friends. Where no one bats a eye when Alex shows up with his service dog. Where I can laugh or cry and know I am loved.

On Monday, it was a special morning with my girl. It was ballet and haircuts and shopping and being girls!

On Tuesday, it was the amazing women who are quickly becoming friends in my bible study. It is women who encourage me and push me and allow me to be true to who I am.

On Wednesday, it was our amazing nurse. She loves my babies and they love her. She is a part of our family. She joins in our craziness and never thinks twice. She lets me vent when I am frustrated and laugh at the nuttiness that is our life. And boy do we laugh!

On Thursday, it was Maddy's school. Maddy is THRIVING in school. She loves every minute of it. She loves the teachers and the friends and the learning and the reading and music and playground. We are so grateful to a staff that loves her well and goes out of their way to make sure she is okay and safe.

Today, it was Mom's club. It was time with Mom's who are going through the same stage as I am. Friends who invite us over and let me show up in yoga pants with no makeup!

All week I watched as Alex's fundraiser crept up until he has reached and surpassed his goal. And I was able to show him how he can make a difference in this world by his choices, his story and the life he lives.Alex's Fundraiser

Thank you for being a part of our story. Thank you for helping us find the joy in a life that is not always easy.

Ali

PS- Sorry for no pictures...my computer wouldn't cooperate!