Sorry for the slow update!
We are home safe and sound. As always, Alex is thrilled to be home and surrounded by his things. He is sleeping great. He slept until 8:00 yesterday morning and 9:15 this morning. I think he likes his bed and peace and quiet!
I am settling back in. It is always a challenge to catch up on cleaning, laundry, mail, bills, etc. I am just about caught up.
Unfortunately, we got more bad news yesterday. Bruce's "new" company closed its doors and he is once again without a job. Please pray for us as this is a scary time. Bruce is focusing his search in the Houston area as having the family separated has begun to take a toll on all of us, especially Bruce.
Medically, Alex is doing great. He feels good. He is having no pain from his Pancreas right now. The only problem we are experiencing is severe hypoglycemia. It is so hard for a 4 year old to be attached to tubes for 24 hours a day. Yet each time we try to give a 30 minute break his blood sugars plummet.Yesterday morning his blood sugar was 29 after 30 minutes off. We continue to try, but it just isn't enough time for him to run and play.
I also had my first meeting with the school that Alex will hopefully attend in the fall. They were very nice and know what a miracle it will be for us to keep Alex safe and healthy in school. They are willing to do whatever they can to make this dream come true. The plan is to meet in May or over the summer and put a ton of accomodations in place for this to happen.
We should be home until the beginning of February. Praise God!