Alex and Maddy

Alex and Maddy

Thursday, January 6, 2011


Do you hear the screaming? That would be me yelling in protest! I just got word that they are not going to let us leave next weekend as we were told. All if Alex's main docotrs talked and feel like we need to make sure we have all the separate issues resolved or well on a path to being resolved before we leave. Because of this they are not ready for us to go home right after surgery. Dr. Koenig said at least another week beyond what we were thinking. I am tired of living out of a suitcase and wearing the same few outfits. I am ready to be home and back in my routine. BUT I love the fact that our doctors care enough about Alex to make sure he is well before we go.

Alex is doing well. He is loving his time with his OT. We are sad that he switches to adults next week. We also got to go up and visit the life flight helicopter this morning. The child life staff and volunteers have been incredible about playing with Alex and giving me a mental break. So we will continue marching one foot in front of the other. Medically, I really have no news from today.

The view of Houston from the helipad


Alex with life flight

Alex sitting in the helicopter

Thank you to all who have sent encouraging letters, notes, cards, etc.


  1. Oh my goodness, what a cutie! What a nice memory to help override the last memory of him in the helicopter. It's so nice to see him up and about and with that infectious smile.

  2. WOW, great pics, he looks so happy :) sorry youre not heading home like you wanted but so glad he is getting the best care. Bigest hugs and always prayers for your boy-
    heidi & Jack