It is amazing how quickly we have gotten back in the swing of hospital life. It feels like we never even left. Along with Jen and Landon, there are 2 other mito families here and another one on there way in today. Plus Mariah and her family are here. So at least I have people to "entertain" me! It was so nice to see Mariah, Brandon, and the girls yesterday. We all wish we lived closer. Mariah and I have such a special relationship. It is just easy. That is the best way I can describe it. Mariah- Thanks for being there for every laugh, vent and tear. I don't know what I would do without you.
Alex seems to be over the "illness" part of this. We are left with all the GI crud that landed us here last time. We started TPN back last night. Today I sit down with Dr. K and try to get her to understand that we can't live in Houston for 2 months everytime Alex gets sick. The plan today is to do a special xray with contrast to make sure his tube is still in the right place. If it is we will slowly start feeds.
I will update more as the day goes on.
PS- Landon needs prayers again. He had been doing pretty well, but had to be rushed back into PICU yesterday with what is suspected to be pneumonia.