Alex and Maddy

Alex and Maddy

Monday, September 27, 2010

Trying to smile again

These last few days have been so full of tears, but also full of stories and memories. Memories that have made us laugh and cry. I have been so blessed to have so many people looking out for me and checking on me. I am so thankful for everyone here and and all my friends and family who are far, but wish they could be here. Your messages, calls, emails and texts have kept me going.

Alex continues to improve. His fever has been gone since Saturday. His headache is long gone. He has been up today playing and walking. He is off oxygen. We have started feeds at a very slow rate. We still have a few things to accomplish before we come home. We need to try a new seizure medication. We always have to be careful when trying a new medicine because of his history of anaphylaxis. It also looks like Alex may need to have a transfusion in the next couple of days.

Please keep the Knight family in your prayers as several days of services start tomorrow.


  1. Ali,
    I'm Joy's sister (BeBe to her girls). Just wanted to let you know you all have been in the forefront of my thoughts all weekend. Praying for comfort and calm this week for all of you. Give my sister a big hug for me when you see her, ok?!
    Love and prayers,

  2. Keep getting stronger, Alex!

  3. We're rooting for you Alex! Big, big hugs to you Ali. ((((hugs))))

  4. It was nice to see you today. We need to get together again. I am often free at lunch these days (esp Tues, Wed, Fri). Let me know and I will bring you something!
    I hope all the medication administrations went well today!!!!