We are hopefully heading home (to Missy's) today!
Alex is doing very well. He is having some pain around the tube, but it is tolerable. Our feeds are up to 20 cc/hr. he is tolerating them like a champ and I don't see any reason why we won't be on full feeds by Tuesday. Yesterday was just a quiet day. Alex was happy to wean off his O2 in the morning and then spend the day "visiting" with all the nurses.
Alex's Vitamin B12 level came back okay. This is both good and bad. It is great that he is absorbing it better now. However, we were hoping low B12 levels were to blame for some of his other symptoms. Because it is normal, it is more likely that his syrinx is causing these issues. I will talk to Dr. Koenig this week and see when we will repeat the MRI of his spine.
We are still in Houston a few more days. Wednesday we finally see Cardiology and then we also see Hematology. We should be on the way home Thursday! Alex and I are ready to get home and back into our schedule and doing school.