Alex and Maddy

Alex and Maddy

Saturday, September 11, 2010


Sorry I haven't updated yet, but I have been exhausted. We arrived home on Thursday afternoon. It is always hard trying to get caught up on household chores and get back into "normal life" routine.

I need to update you on his two appointments we had on Wednesday. We started with cardiology. It was a LONG appt. We were there from 9:00 until 1:15. After all was said and done, the cardiologist felt that his heart is doing well. She wanted to look at the images from the echo again and see his lab results, but she didn't expect to find anything. So that was awesome news! next we saw hematology. Dr. Brown is a doctor that I like more and more each time I see her. She increased Alex's Vitamin B12 a ton. We also discussed when we will use the Vitamin K shots that help with his clotting. The last thing we talked about is surgeries and what needs to be done before each surgery. She would like Alex to receive a plasma transfusion before any surgery that "could" cause bleeding. So all in all we had a productive appt. We were at the hospital from 8:30-5:00 so it was a long day.

After leaving the hospital, Missy and I left the kids with Ben and headed off to a meeting about an upcoming fundraiser for mitochondrial disease. Some of you may remember that 2 years ago I walked in the Christopher's Heart Fun Run. That event has teamed up with the UMDF and this year (February) it will be the Energy for Life Walkathon. I am excited to walk with Alex and to raise money for research to find treatments and hopefully a cure for mito.

I promise a "fun" update soon with some pictures.
Thank you for continuing to lift our family in prayer.

1 comment:

  1. Ali,
    I'm so happy you finally had the cardiology appointment.