Alex and Maddy

Alex and Maddy

Wednesday, September 22, 2010

A Quick Update

A long stressful day and night! I never slept at all last night. Alex was really agitated and his fever climbed all night long. It reached 105.3 at about 3:30 in the morning. The doctors came and decided to run a blood culture and some other labs necessitating sticking him to get blood. We finally started to get him settled close to 5:00 this monring. He had not bee asleep long when he had a nother seizure. Once again the doctors had to come an dat that poin they stayed in our area until our regular team arrived this morning.
Alex's temperature stayed at 105.5 for most of the morning. Concern grew as we couldn't get it down and it was decided we needed to be aggressive so the temperature in our room was lowered to 55 degrees, his cooling vest was soaked in ice water and put on, we placed cool cloths on his head, neck and feet and ice packs under his arms and in his groin. Then we set a fan up to blow on him. With all of these measures we were able to get the fever down to 103.7.
In the meantime, Dr. Koenig came in with the news that they had found the source of infection. His brain MRI's showed some pretty nasty sinusitis. And so a plan was formed. We consulted ENT, immunology and hematology. At this point it is thought that it is likely they will have to go in surgically and clean out his sinuses. The ENT has ordered a CT scan to be done tonight or tomorrow morning and then a definite decision will be made.
Alex had another possible seizure this afternoon despite an extra loading dose of seizure meds. We are giving high doses of meds and watching closely. We have also left him on oxygen. I think that is all. I will keep you posted.
Thank you for all the thoughts and prayers.


  1. Oh Ali - please know how much we are praying for you all. Wish I were there - I know how scary the seizures are...always watching for your updates. Hope you can rest a little soon.
    Love & hugs, Natalie Furman

  2. I just came across your blog while viewing other mito blogs. I am so sorry that your little boy is ill. I will be praying for all of you.

  3. Bless his heart. I am glad you found the source of the infection. What an awful night. I hope you both were able to sleep a little last night. Lots of hugs. I will keep saying prayers for Alex. Stay strong, as you always do.


    Lynda Mitchell

  4. gl w/ the sinus surgery. Hang in there guys!!