Things coninue to go pretty well here. Alex is feeling pretty good...some stomach pain and some headaches, but not too bad! Alex's labs this morning look much better infection wise. His blood counts are on the verge of ransfusion level and his IgG (immune function) is very low. We are working on clamping Alex's J tube for periods as he tolerates it. In hopes that we can get his GI system working again and get off TPN and back on feeds. That would make Buggy and Mommy very happy.
The plan is to be discharged Monday morning in time to make it to an appointment with the anesthesiologist. We will spend Monday night at the Knight's house and head in Tuesday morning for his dental procedure and SSEP. We will be readmitted after the procedure for at least 24 hours, but possibly longer depending on if we think we can work on resuming feeds. The following week we have a number of outpatient clinic appointments. We are hoping to head home on May 7th.
We are fortunate to have a team with a resident who knows us well and is awesome to work with. We have also had great nurses as we usually do on the 9th floor. And we have two other families here who are close friends which always helps Mommy's mental sanity!!!!!
So all in all this has been pretty easy as far as admissions go. Thank you for checking in on us.