Lots to update....
First a prayer request for a good friend. Cooper Knight has been on the transplant list for a small bowel and colon for a year. His call came last night to head to Pittsburgh for his new organs. Missy and I were so glad we were here to help Sarah emotionally and logistically. We love you guys and are praying for Cooper today during his surgery and for a smooth recovery. We love you guys.
As for Alex....Sunday was a pretty quiet day with nothing new to report. We stopped antibiotics and Alex was feeling pretty good except for still complaining of belly pain. Sunday night he woke up crying and whimpering because of pain.
Yesterday I woke up to a child that was not my sweet Alex. He was combative, belligerent, and just downright mean. We were all pretty sure that his ammonia must be high as he was acting like he always has with high ammonia, but when we checked it it came back ok. So we really aren't sure what to make of it. Other then that things were pretty quiet until Cooper's call came and we started the mad dash to get them packed!
Today was Buggy's dental cleaning and SSEP that we have been waiting for. He did really well. I was shocked when the dentist came out and told me he has 4 more loose teeth! Then the infamous SSEP that has been cancelled 4 times was finally completed! I don't have results yet, but hopefully soon. Alex seemed to do pretty well with anesthesia. He did not have a seizure this time. We are so thankful the new meds are working. His temp is up some, but that is pretty normal for Alex following anesthesia. We have Bug on oxygen which he always hates and we will check labs and watch him tonight. Assuming he stays stable we should be discharged tomorrow.
Sorry I have been slow with updates.