What a day!!!!
After accessing Alex's port for the third time in three days and praying for blood...no such luck. And so the scrambling began. We wound up going to Dr. Benzick's and having our dear Judy draw blood. Unfortunately after several sticks we only had 3 cc's of blood. We normally collect almost 8! So on a wing and a prayer we took the blood to the lab not sure if they could run everything or not. Luckily, they did everything! Our blood counts continue to drop so we will need a transfusion again next week. His liver enzymes are slightly elevated from the TPN, but nothing serious. And his pancreas labs are a little higher this week.
In other excitement...When I went to give Alex his meds this morning his feeding tube was half in his belly, but the button that is normally flush to his skin was hanging by his knee!!! I knew that thing had been out of place! So i had to pull that the rest of the way out and replace it with a plain G button. It is really a blessing in disguise as his belly already feels better and his output is less already. Talk about a shock though!!
So needless to say between the transfusion, port issues and J tube we will need to head back to Houston next week regardless of our readiness to feed.
Thank you for all of the prayers. May you all have a Very Merry Christmas!