We are in Houston! It is scary to be So comfortable in a hospital, but we have been here so much it really is not the least bit intimidating to be here.As sad as it is it has become our home away from home over the last 5 months.
We got here yesterday right around noon and were in the ER for 4 hours. They wanted labs done before we could come to our room. Poor baby had to be stuck, but luckily we got everything we needed from one stick. It took Forever! They knew if they drew blood the normal way they would blown the vein so once they were in they let the blood drip, drop by drop into the tubes...all SIX!!! Once they heard him cough they were worried about pneumonia, but a chest xray quickly ruled that out. Once we got up to the floor they TPA'd his port (clot busting meds) and 45 minutes later we had blood! I don't know who was more excited, me or buggy!!! We also transfused last night. Around 2 in the morning, they came in and told me that Alex's nasal swab for flu was positive for strain B, continuing our stellar history with the flu. Dr. Koenig also had him started on 2 heavy duty antibiotics until our blood cultures come back to rule out a line infection in his port.
Alex is doing pretty well. The fever stayed high until last night and has come down (once we got blood). I am not sure if it is gone for good or if it will rear its ugly head again. Poor baby had awful chills all day yesterday in the ER. I am tired there was no sleep to be had last night, but at least we are making progress. Oh, one last note. We will NOT be attempting feeds this trip. His pancreas enzymes are higher then they have been in weeks.
I'll update more once I see Dr. K.