We are coming home!!!! In Alex's words...WOOHOO! They think they are going to discharge us tomorrow. They feel pretty strongly this is just the motility problem. They don't feel it is necessary to put him through any more testing right now. The plan is for us to come home and closely monitor his ins and outs. Basically we will measure Alex's pee and what he puts out his G tube. If that is more then what he takes in then we will replace it with fluids at home.
We are still waiting on GI to okay this plan. We are so happy to be heading home in time to see Grandpa and enjoy Christmas. We will be coming back to the hospital on December 29th for "at least" a few weeks.
Thanks for all the prayers.
Ali
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