Alex is feeling better. His stomach still hurts, but the fever is gone for now. The plan is to start half strength feeds tomorrow. We will start back at 5 cc/hour and see if his fever comes back. Please pray his pain stays under control.
Alex is so loved at this hospital. We are so blessed that when we are here he is surrounded with people who love him and are so very kind to him. he woke up about 9:30 this morning and minutes later was already involved in a music session with Christine. Music Therapy is Alex's very favorite thing to do at the hospital. If he could spend all day playing and making up stories with Christine he would. She had no sooner finished when Stacy his favorite Child life specialist came in and whisked him away. I got to enjoy a peaceful shower and Alex went to the playroom to make me a surprise. He also did plenty of visiting with all his nurses. When he woke up this morning his first question was "when can I see my cute Dr. Koenig". I knew she had clinic this morning so I told him it wouldn't be until this afternoon. So it was much to my surprise when right before 10:00 Dr. Ka nd Lakeesha popped in! They told Alex they just couldn't stay away. What an amazing team we have!
I quickly discussed with Dr. K and Dr. P the frequency of Alex's fevers. They are pondering why Alex gets So many fevers. Dr. Koenig has said that none of the rest of her patients get fevers as often as Alex. It would be a pain anyway, but the central line just complicates matters. Even if we are 99% sure we know why he has a fever, because of the line we cannot take any chances and it just means that the safest place for Bug is in the hospital when he spikes a fever. I also asked once again about Buggy attending school. The matter was quickly put to rest as Alex cannot seem to handle any time in groups of children without getting sick. They did both agree to allow him to participate in cub scouts in the fall!
Thanks for loving us, praying for us and walking this journey with us.