tag:blogger.com,1999:blog-3818065716831084261.post1531881267751437745..comments2023-10-26T07:59:13.479-05:00Comments on Alex's Adventures: Feeling BetterAlihttp://www.blogger.com/profile/00246000537666581560noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-3818065716831084261.post-51229910756939340502010-05-19T13:44:44.839-05:002010-05-19T13:44:44.839-05:00I'm sorry you guys can't catch a break fro...I'm sorry you guys can't catch a break from these back-to-back hospital stays. I wanted to chime in about the fevers- Eithene runs them all the time. Frequently we know why: infection. But about 1/4 of fevers we never can pin to a source. And at this point I mean high fevers. There was a time when we followed our hospital's typical "line protocol" of admission w/cultures and sepsis rule out for any fever over 100.4F. Hmmm. That happened essentially EVERY day. <br />Because of E's serious autonomic dysfunction we were eventually able to agree that we won't do sepsis work-ups for a fever less than 102.2F (39C). Even with this caveat, we still have multiple fevers every month that go over our limit, that we never can find an infection for. This last week she's had blood cultures done twice for fevers around 103. But, since she has had these fevers while on 2 IV abx, and an IV anti-fungal, we are pretty certain it's autonomic irritation from something.<br /><br />I hope that you can find the source of Alex's fevers that aren't infection-related. E definitely had fevers just from feeds. They are a lot of stress on the body. Another possibility I found in my research was carnitine deficiency- that can also cause fevers. Thinking about you guys!<br /><br />Jessica<br />www.fromthebanksofjordan.blogspot.comJessicahttps://www.blogger.com/profile/09876285592078060303noreply@blogger.com