Alex and Maddy

Alex and Maddy

Wednesday, May 26, 2010

Hope

You will be secure, because there is hope. Job 11:18

Hope is what I am surviving on right now. Hope that Buggy will remain healthy. Hope that we can get off TPN and back on feeds. Hope that Bruce gets a job soon. Hope that we don't lose our insurance. I feels like we are treading on thin ice and hope is my life line.

Overall, Bug is doing pretty well. His labs Monday were awesome! The best I have ever seen from Buggy. It was so encouraging. We cannot wait for him to be able to get to where we are doing TPN only at night and then hopefully off it all together.

We had a nurse come out this morning and we really liked her. We are so hopeful that she is the perfect fit for our family. She will be back Friday for a little longer.

Tomorrow, Bug and I are heading to the zoo to meet some of our friends who have 3 little girls with mito. We can't wait to have some time with friends.

I will update tomorrow with some pictures!
Ali

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