Once again I apologize for the lack of updates. This is the first time I have been on the computer since Wednesday.
Alex got his transfusion on Wed and we were discharged Thursday morning. He perked right up after the blood. We arrived at the Knights and have been busy playing and enjoying ourselves.
Today we have an appt with GI, tomorrow we see endocrinology and Thursday we see a special pediatrician. The exciting news is that tomorrow we pick Mimi up from the airport.
Alex is doing good except for some horrible hypoglycemia. His blood sugars are going dangerously low while I change his TPN.
I will update in a few days.