Alex and Maddy

Alex and Maddy

Tuesday, February 17, 2009

We had a great day yesterday! Praise God! Alex only had 2 doses of his pain med all day!!!! Surgery is happy with how he looks and feels he is ready to feed whenever GI is ready. Dr. Koenig wants to start Alex on a motility medication today and start very slow feeds tomorrow. We will start with 5 cc/hour (one teaspoon) of sugar water and see how he does.

Late yesterday after all the doctors had left for the day, I got news that some of Alex's genetic bloodwork is back. We had run a panel for Hereditary pancreatiti​s back in January. One of the markers came back positive and one came back with a variant. I am not sure what to make of this. I am curious to get the Doctors take on this. If Alex has hereditary pancreatiti​s then our chances of getting back on feeds are greatly reduced. So we will see what the doctors say.

My computer seems to be working better so I will try to update again when I know more!


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