We continue to trek on...We have been at 50% formula at 10 cc's an hour for 2 days now. Alex continues to struggle with stomach pain. Dr. Koenig and I have talked extensively the last few days and have agreed to keep trying until Monday. She has talked to all of the Gi specialists as well as the surgeon. If we are still having trouble tolerating feeds and/or need lots of pain medications come Monday we will surgically place the separate J tube.
Other then that we need a transfusion tomorrow. Our hemoglobin dropped faster then usual this time, but it is not unexpected with surgery and his central line infection.
We continue to pray for Alex to sleep as he has been struggling.
Ali
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