Just a quick update to let you know of a change!
We have stopped the erythomycin. That was the new motility medication which we knew could effect the mitochondria. Alex's labs were HORRIBLE this morning and one of the things that jumped out at us was his lactic acid. (Kids with mito are prone to lactic acidosis, so this is a lab that lets us know if metabolically he is doing well). His Lactic acid was 2.9 up from .9 yesterday. We all assumed it was a lab error. We repeated it and it was 2.6. The high end of normal is 1.8. Dr. Koenig immediately made the call to stop the erythromycin. Other then that things are fine. We are scheduled for early Monday morning.