What a Christmas this has been!!!! This is obviously not the Christmas we had planned and dreamed of but it will be a Christmas I will always remember. I have so very much to be thankful for this year. My emotions are raw today. I look at my close friends and know how different this day could have been. I am so thankful to see a smile on my angel's face.
Buggy has done okay. He is still in quite a bit of pain and pretty nauseous from the pancreatitis. He is also very weak. He can sit up for a few minutes at a time, but still spends 90% of the time lying down watching movies or resting.
Santa was very good to Buggy. He had a lot from Santa and the family lus people from the hospital kept bringing stuff in. He had quite a load by the end of the day. We had the room decorated and a Christmas tree. And made things as festive as possible.
The plan from here....We were supposed to be going to surgery on Monday to place a new port, but surgery would like to wait until his 2 week course of antibiotics is done. The doctors are all hashing it out. So I am not sure. We also did an abdominal ultrasound today to make sure nothing was going on internally. Alex's pancreatitis numbers continue to rise despite not getting anything in his gut and draining both his G and J tube. They want to be sure this is just Alex's "regular" pancreatitis and not a cyst, infection, obstruction, etc. So for now we sit and wait. Alex does not feel well enough to come home yet anyway so I am in no rush to push him out the door.
Bruce and Dad will leave tomorrow. Mom will stay until Tuesday. I am so glad to have my family here through this. I will update as I know more.
Ali
Buggy has done okay. He is still in quite a bit of pain and pretty nauseous from the pancreatitis. He is also very weak. He can sit up for a few minutes at a time, but still spends 90% of the time lying down watching movies or resting.
Santa was very good to Buggy. He had a lot from Santa and the family lus people from the hospital kept bringing stuff in. He had quite a load by the end of the day. We had the room decorated and a Christmas tree. And made things as festive as possible.
The plan from here....We were supposed to be going to surgery on Monday to place a new port, but surgery would like to wait until his 2 week course of antibiotics is done. The doctors are all hashing it out. So I am not sure. We also did an abdominal ultrasound today to make sure nothing was going on internally. Alex's pancreatitis numbers continue to rise despite not getting anything in his gut and draining both his G and J tube. They want to be sure this is just Alex's "regular" pancreatitis and not a cyst, infection, obstruction, etc. So for now we sit and wait. Alex does not feel well enough to come home yet anyway so I am in no rush to push him out the door.
Bruce and Dad will leave tomorrow. Mom will stay until Tuesday. I am so glad to have my family here through this. I will update as I know more.
Ali
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