Alex and Maddy

Alex and Maddy

Monday, December 20, 2010

In PICU, prayers needed

This will be short because I need to focus on Alex, but I wanted to get an update out.

Saturday night Alex spiked a fever that came down very quickly with cool cloths and a dose of Tylenol. Because Alex typically won't respond to tylenol when he is really sick, I thought we would be okay to watch him and reassess in the morning. Alex woke up with a temp of 98.8 and was happy and playing. Around 11:00 AM on Sunday he took a turn for the worse and suddenly starting shaking really badly. He was crying in pain and clearly not well. I put in a call to the doctors and it was decided we needed to head to the hospital. I did not feel like I could safely make the trip to Houston so I decided to head to the local children's hospital. We were taken to a room immediately and the decision was made pretty quickly to transfer us by jet, as Alex's temp was back up in the 104's. Within 4 hours we were in the hospital in Houston. Within minutes of arriving it was decided that we would be heading to the PICU "for closer observation". Before we were able to get him to the PICU, he became very disoriented, starting having seizures and was having very high heartrates and respirations. Once getting to the PICU things started moving very quickly. He was given 2 boluses of medication to stop seizures, extra IV's were started, more meds were given. labs were drawn, etc. He continued to get worse and within an hour the decision was made to place him on a ventilator so his little body could rest.

Once intubated, we saw his vital signs start to stabilize, however his labs continued to look bad. We had multiple doctors and nurses in our room at all times last night. At this point his vital signs remain okay, but he is still extremely sick. He is heavily sedated and still on the ventilator. We know he has a line infection (gram negative rods for those that are interested) which has caused the septic shock. He has also had numerous severe allergic reactions to medications. They are reducing the settings on his ventilator in the hopes that he will take some breaths on his own. He will not be able to come off the ventilator until the swelling subsides and his labs stabilize.

I am extremely thankful for the fast transfer from Fort Worth and the exceptional care we received upon arrival. I truly believe they saved Alex's life. We continue to ask for your prayers as we have a long road to recovery.
Ali

16 comments:

  1. Sending well wishes and hugs~

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  2. I'm here rooting for you and little Alex. God bless the both of you.
    Lynda M.

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  3. Praying for a very quick healing for Alex!

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  4. Many Prayers from pack 10 Cubs!!

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  5. Jane Anker D'AntonioDecember 20, 2010 at 6:50 PM

    Praying for you and Alex, Murph.
    Love you.

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  6. So sorry Alison and Praying hard for your lil man.

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  7. I'm so, so sorry to hear this, Ali! I'm praying and thinking of Alex. Hugs and loving thoughts are coming your direction.

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  8. I am so sorry. I hate that he is sick again. I wish we could do something to help. We are leaving Thursday and will be back Monday. Let us know if you need anything. Praying hard for little Alex.

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  9. Ali - you guys are in my prayers. This must be very scary. I have a light week at work - please call me if you need anything. I live very close to the med center.
    Betsy Furler

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  10. I am so sorry for what is going on with Alex. Its so sad how quickly things can go from bad to really bad. you will be in my thoughts and prayers. thank you for the update.

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  11. (((HUGS))) so sorry, saying many prayers for your sweet boy--
    Heidi & Jack

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  12. I am praying for Alex right now and will continue to pray this week.

    Heather (I am the one whose husband found out about you guys from a friend at work)

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  13. You all are in our thoughts and prayers! Give Alex hugs from us. Please keep us updated as you can.
    ~Erica

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  14. We are praying for God's healing hand upon Alex. We are think of you all Ali.
    Melissa Gniazdowski

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