Alex and Maddy

Alex and Maddy

Tuesday, September 30, 2008

We had a decent weekend. One of our favorite nurses worked Sunday and Monday so that always makes for a better day. Unfortunate​ly our 2 favorite nurse are both on vacation until we come home (hopefully).

Medically speaking not much to report... Alex's feeds are up to 50 cc/hr of half strength formula. His belly is really distended, but not hurting him so we are just watching for right now. I am praying we continue to progress. It looks like we will be getting another blood transfusion in the next few days. Alex's hemoglobin and hematocrit are low and he is pale as a ghost. We are waiting to see what tomorrow morning s labs look like. (We run labs Mon, wed, and Fri mornings).

A wonderful, generous woman Joan, came and cut mine and Alex's hair last night so that was a really nice treat. She brought her 19 year old son and Alex had a blast playing with him. They even played the Wii.

Other then that things are pretty much the same. I will update tomorrow.

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