Alex and Maddy

Alex and Maddy

Tuesday, September 23, 2008

Things are trucking along. We are still creeping up on our feeds. We are going up b y five cc's every other day. My best estimate is that we will be home mid October. Alex is doing well. He is pretty cranky on the day that we increase his feed and then he stabilizes the next day. He is not having any belly or leg pain at this point. He is still really itchy and has a rash, but we'll take that. We have continued to have some blood pressure and temperature issues overnight, but they are part of Alex's mito.

Landon continues to need your prayers.


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