We are continuing to have trouble sleeping. Every naptime and bedtime is a fight. It is so hard for me to adjust to having my good sleeper struggle to fall asleep. I am nearing the end of my tank. I desparately need a good night's sleep to recharge. The main problem is Alex's legs are restless and hurting. We finally have a prescriptio​n tonight if it does not get better.

Alex also has a rash on his upper back, neck and ear. We are not sure what he is reacting to but it is his typical allergy rash.

SUrger​y to switch Alex's gtube is scheduled for Wednesday. I do not have a time yet.

On a good note...Alex got a hair cut on Sunday. He looks so much better. Then today the child life girls took him on a field trip. We got to go up to the roof to see the life flight helicopter. It was SO COOL!!!!! We even got to sit in the pilot seat. As soon as I get the pictures I will upload them!

Please pray for calm unhurting legs and sweet dreams tonight.

Ali