Alex and Maddy

Alex and Maddy

Tuesday, September 16, 2008

We are having a really good day! We switched to half strength feeds last night. We were able to get to 15 cc/hr in the J tube today with no stomach pain. He is playing and his spunk is back.

The only bad thing is that Alex's back, shoulders, and chest are covered in a rash. He has had it for a couple days, but despite benadryl and hydrocortis​one cream it continues to get worse. We don't know what he is reacting to. Poor baby is so itchy!

Thing​s are getting back to normal around here. The nurses and doctors are gettting back on regular schedules. Unfortunate​ly, the city is still a complete mess.

Landon is holding his own. He is still on the vent, but plans are to come off this weekend.

We still do not know when we will be home. My best estimate is in 2 weeks. I am so sick of the hospital. I am just bored and ready to be in my house and my bed. Alex has been such a trooper through all of this. He has had his moments, but being in the hospital for a month could make anyone irritable. He loves "his" nurses and seeing his "friends" (the child life girls). He is spoiled ROTTEN, by everyone here.

Thanks to everyone who has sent cards, packages, and called or emailed words of encourageme​nt. They really are appreciated even if I can't always let you know. Please keep the prayers up.

Ali

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