Alex and Maddy

Alex and Maddy

Saturday, August 23, 2008

We are still kind of in the same place. Alex is not doing great, but we are hanging in there. Dr. Koenig is back in town this weekend so we will touch base and see where we go from here. Alex has been on IV fluids since Wednesday. We are going to attempt some VERY slow half strength feeds this morning. He has been such a trooper. It has been a hard week for both of us. He has been tethered to an IV pole. I am sleep deprived. Having to give meds around the clock. And the house feels like a hospital ward. We have been able to fool ourselves into believing Alex really isn't very sick, but it isn't very easy to do that this week. As always, my buggy has handled himself with more grace then anyone I know. Always a smile on his face, whether I am coming to stick him with a needle for the tenth time that day or wake him up for the fifth. I am so very proud of him.

Ali

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