We are happy to still be home! I am so thankful for Alex's port. We have switched Alex to Iv fluids and stopped is feeds once again. Immediately his temperature and blood pressure returned to normal. This just verifies what we were thinking...Alex's stomach is not working right now. We think because he is still fighting the infection he picked up in NC. With mito it all comes down to energy. Alex's body doesn't have enough energy to fight the infection and digest any food so his body is having to work too hard thus increasing his blood pressure and temperature. We will wait a few days and try again.
Thanks for all the prayers.