Where were all the prayers? Just kidding! I did really well today. The IV on the other hand didn't go so well. It took about 5 hours and about 10 sticks. Poor baby!

We met with Dr. K this morning. Alex's preliminary report is back on his muscle biopsy. It showed inflammatio​n throughout the muscle. We aren't sure what it means yet. BUT it means something is going on.

We also saw GI and Endocrinolo​gy. They have a few more tests to run and another syndrome we will look into. Not a lot of answers today, just a lot of telling our story over and over!!!

Surg​ery is tomorrow, but we don't have a time. I will update once surgery is over.

Ali