I really don't have a whole lot to update. We are home and loving every minute. It feels so nice to be in our own space. To have the suitcases unpacked and put away. To know that there is no looming trip on the horizon. As always we are trying to dive back into our regular routine while catching up on bills, laundry, cleaning, mail, etc.
Alex's temperature finally broke late Monday night. It was very interesting because his temp came back to normal about an hour after we lowered the rate of his feeds to our previous rate. (We had been diluting his formula and running it faster when we stopped the IV fluids). I am not sure if this was a coincidence or not, but I was just glad to see a normal temp. His temp stayed down Tuesday while he enjoyed his time in music and playing with the child life volunteers. We also had a very special visit from Baskets of Hope. They are a group that brings baskets of treats along with bibles and christian music to kids in the hospital. The baskets were delivered by two Houston Texans. They hung out with Alex and prayed for him. He enjoyed meeting "real" football players. All in all it was a good day. We headed home Wednesday morning.
Alex is doing okay. I was hoping he was going to perk up a little quicker once starting TPN. He is still pretty low on energy. We are not sure if it is still his body trying to catch up on nourishment or getting over the virus that made him sick. Either way we are hopeful that his spark is back soon.
I can not thank you enough for al the prayers, messages and calls. They continue to lift us up when we are down. We are so very thankful for the incredible group of family and friends that stand beside us.