The roller coaster has continued.
The good...Overall, Alex is doing better. He is still very quiet and has barely been out of the bed. But at least he has stayed fever free today. Feeds are going well. Alex is now at 20 cc/hr. He is tolerating them with no pain.
The bad...Alex is sleeping quite a bit. I woke him up after a 5 hour nap yesterday and woke him up after 12 hours this morning. He slept for 4.5 hours this afternoon. He is still complaining of a headache and there is some debate over whether it is still from the lumbar puncture or because of his illness. He remains on 2 strong antibiotics. I do not know the plan on if we will continue these or come off them. He is extremely pale and is pretty much just laying in bed watching videos all day.
We are hoping things continue to improve and we head home Monday.
Thanks for checking in.