Alex and Maddy

Alex and Maddy

Saturday, October 10, 2009

What a crazy week it has been!

The weather has been awful! We always joke that Dad brings bad weather with him because this happens every time he is here. I think it has rained every day but two since he has been here!

We have laid pretty low this week because of the weather and Buggy's virus last weekend.

Med​ically speaking it has been a weird week!!!!! Two of Alex's labs are lower then we would like. His B12 level has fallen below our acceptable level, but we will watch it for a little while and see if it comes back up or if we need to increase his medication. His IgG level (immune system marker) als​o continues to trend down. It is something the doctors have been watching for a while so we will watch, but not treat at this point.

Starting last week, Alex started getting large red spots one at a time. We are up to number 5. They are between quarter and half dollar size. At first we thought bug bites, but as they continue we are finding that theory less likely. We are not overly concerned, just curious. Our allergist/i​mmunologist is looking at pictures and trying to see what she thinks.

On Tuesday, Alex got a bloody nose that bled off and on for 3 hours. It was not large amounts of blood, but just lasted long. Since we discovered Alex's clotting issues, bloody noses are something I have been warned to watch for. I am certainly not as relaxed about it as I would be if there were no clotting issues. Our plan for now is just to look at his numbers on Monday and let the doctors know if it happens again.

Tonig​ht is the football game.

GO PIRATES!!!!​

Alex has been to one ECU game and he was hysterical. He cheered and hollered and just plain loved it. My Aunt Ann and Uncle Oscar are meeting us to tailgate and come to the game. It should be a lot of fun.

I think that is all for now. Thanks for checking in.
Ali

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