Alex and Maddy

Alex and Maddy

Thursday, April 16, 2009

Yesterday was our apptointmen​t with a local metabolic geneticist. She is someone we are hoping to add to our team as a local resource in the case of an emergency. She was very nice and thorough. We spent quite a long time going over Alex's history and laundry list of diagnoses. She wsa surprised at how good he looks for being so complex (in her words). It was a good appointment​, but we didn't learn anything new.

Today was a quiet day at home. It was also lab day. I was concerned about his triglycerid​es as yesterday when we drew blood I could actually see the fat in his blood. Luckily it looked better today and his numbers while not good were down a little bit. The rest of his labs also looked good.

The most exciting news is that Grandpa decided to stay longer. He is now staying till Monday morning. This is really nice since Alex is really enjoying his company.


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