Alex and Maddy

Alex and Maddy

Friday, October 3, 2008

Not much to report these days... Alex is REALLY itchy ever since getting his transfusion. He is getting benadryl and atarax two antihistami​nes alternating every 4 hours and extra doses of benadryl as needed every 6 hours and is still scratching constantly. We talked to Dr. Koenig and Dr. Pacheco (allergy and immunology) today about trying IVIG infusions once a month. They are typically used for immune deficient kids to help them fight off infections, but b/c it helps the immune system it may help Alex's allergic reactions. Dr. Pacheco is going to do some research and see if she thinks this will benefit Alex.

We also talked to Dr. Koenig about his anemia. My concern is that we won't be checking his blood counts at home. She feels like since he is going a month between needing transfusion​s and we will be back in Novembere we should be okay till then. We will also give an adult dose of benadryl and steroids before any future reactions.

T​he last discussion was about discharge. We should be going either October 13th or 14th. We have a few things Bruce needs to get before we come home, but we are pretty well set.

Thanks for all the prayers.

Ali

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