Another stumbling block has fallen in our path... Alex has a cold and a fever. A few years ago, I wouldn't have even batted an eye at a fever of 101 as some of you know. I sat home and weathered many fevers over 105. Now that we know about the mito every illness causes just a touch of fear. We watch Alex like a hawk. We have been told that it will be an illness getting out of hand that will weaken Alex and that has the potential to take his life so that is always in my mind. We laso have to watch every fever VERY closely because of his port. A central line infection is life threatening in and of itself because the line is in a vein that travels straight to the heart. So needless to say my days of shrugging off colds are gone.

Howeve​r, I only know one way to live this life and that is with a smile on my face and my feet marching forward with God by my side. I ask that you pray for me to keep my chin up as we forge ahead. The last year has been a hard one. It is not easy to stay positive when hit after hit comes with no break in between. Pray that my faith sustains me and carries me until life blesses me with an easier path to march.

Ali