Wow! It has been a rough day so far! Hopefully, the rest of the evening will be better. We got to the hospital at 10:00. We were in our room a little before 11:00. Unfortunate​ly, it took 3 IV sticks and 4 attempts to get the ng tube placed. So it was 1:00 before the first set of torture was over. Luckily, Alex rebounded quickly. We made a trip to the playroom and have watched a few movies. It is now 4:20 and Alex has not had any poops yet, so it looks like we are in store for several enemas at least. We are also having to stick his little finger every couple hours because his blood sugars were low earlier. Right now they seem okay so hopefully, now that the fluids are going they will stay up.

Keep sending good vibes guys. Today was awful. 3 sticks to place IV, 4 tries to get ng placed, 4 finger sticks for blood sugar, dry heaves, blood pressure drops and it is 11:20 and he still has not pooped. We have had 1 enema already. Alex just closed his eyes for the first time all day and they are coming in at 12 to start hourly enemas. He has to be completely cleaned out by 7. Surgery is at 7:45. I'll try and update after surgery.


Thanks for all your thoughts and prayers. We love you.

Ali