We had a great night. Alex (and Mommy and Mimi) slept from 11-6. Alex's vital signs have been good. We had to give another dose of benadryl last night around 11 but since then he has been totally fine. The swelling in his face has gone down some. We are going to switch this morning from tylenol w/codeine to plain tylenol.
His feedings are going really well so far. He started at 20 ml/hour. We are now up to 40 ml/hour. Our goal is 75 ml/hr. If he continues to tolerate the increases we will be up to 75 ml/hr around 7:00 tonight. So depending on how long they want to watch us and what else is going on they will discharge us either late tonight or early tomorrow.
They have visiting dogs coming today so Alex is excited for that. We also have plans to watch a movie with his friend Monty (another little boy on the floor). We'll let you know how things are going as the day progresses.
Boy what a difference a couple days make. It is much more relaxed around here today!
First- We will be discharged tomorrow morning. They made a mistake when calculating the amt of calories and rate for the formula. We have to get to 90 ml/hour. We will get to 90 around 10:00 tonight and then they want to watch him for a few hours. So we will wait until after after rounds (because Dr Putnam is on the floor this weekend).
Second- WE HAVE A DIAGNOSIS!!! Alex has Eosinophilic Enteropathy. His biopsies showed eosinophils in his duodenum, small intestine, and colon. He will still be allowed to eat blueberries, bananas, pinto beans and carrots, but will lose his other foods.