Alex and Maddy

Alex and Maddy

Wednesday, June 17, 2020

Wednesday Update

We have had a GOOD day!

Let me see if my poor exhausted brain can remember everything! I had sent a message to our pharmacist and Dr. O last night about the TPN. Our pharmacist sent me an email first thing this morning that she was so sorry and she would get to the bottom of it. Dr. o said not to worry that he would be sure that things got fixed for today. It is nice to wake up knowing there is support.

We saw surgery first thing this morning and from their side of things they are really happy with how everything is going.

 Next we saw the hospitalist  She was someone new to us, but earned big brownie points because she came in and rattled off all of the things she had changed or “fixed” or started working on before she even came in. She was on top of everything and wanted to know what else we needed. I love someone who is organized and gets things done!

Next we saw nephrology. Alex’s blood pressures have been really good and labs look great on their end so they are going to stop rounding each day.

Hematology didn’t make any changes today. We will check labs again tomorrow morning and see if we need to adjust his blood thinner at all.

Our pulmonologist stopped by and is encouraged by how well Alex is recovering from a respiratory stand point. She would love us to do some pulmonary function tests before we leave the hospital  and we need to schedule an appointment with her.

Alex’s Clinical Therapist stopped by to check in. Him and Alex will have some time on Friday to meet and give Alex a space to work through his emotions about some of what has transpired.

Endocrinology is going to attempt to make a small adjustment down on his steroid dosing. Fingers crossed that is successful. They also let me know that Nephrology had checked some thyroid labs and they were off. We need to recheck those when we are farther out from surgery to see if there is truly a problem or if it was because of the trauma of surgery.

We are still waiting on Dr. O. I knew he would be late because Wednesday is his surgery day. I don’t expect him to make any changes.

The other thing is we are trying to wean off one of our pain pumps. Pain will look at how many times he needed it and make a decision tomorrow about whether to keep it or not.

Our nurse today has been excellent. I think that is all.

Ali

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