Alex and Maddy

Alex and Maddy

Saturday, June 20, 2020

Saturday Night

We had a much better day. We added to new pain medications and have stopped one that we can’t go home on tomorrow. We are hopeful to stop the second one tomorrow. The only issue is that one of the new meds can cause an issue with your heart rhythms. They did an EKG prior to starting and we barely squeaked by. They will repeat an EKG tomorrow and again on Monday. As far as the pancreatitis, because Alex is already on TPN, there is no treatment beyond pain meds so as long as we can control his pain we can still discharge on Monday. They would also like us to complete pulmonary function tests on Monday.

Alex laid flat in the bed and did not move until after lunch, but once we had the new pain meds on board he perked up. Zoey came for a visit, but we decided not to keep her here because of how bad he felt this morning. She was SO happy to see him. She jumped right up in his bed and cuddled up with him and Bruce had to drag her out when it was time to go.

While Bruce and Zoey spent time with Alex, I played with and cuddled my baby girl. She was so happy to have some time with Mommy, but was really sad when it was time to go home. She was also upset that she couldn’t see Alex. It will be good for all of us when we are back under one roof. At this point we are really just ironing out final details and making sure our pain plan is good and we should be able to head home.

Thank you to everyone who has supported us in so many ways.

Ali

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