Alex and Maddy

Alex and Maddy

Sunday, June 21, 2020

Sunday Update

Once again there isn’t much to report. Overall, Alex is doing really well. His EKG today was slightly worse, but I am praying he can stay on the new medication. Hi pain level mid morning was better than his baseline at home. Alex lives with chronic pain everyday that is more substantial than most of us would tolerate. To hear him say he felt better this morning and wasn’t really hurting at all was incredible. I really hope we don’t have to stop this medication. Other than this one new medicine everything else has been stopped. We are on all our home medications. Plan is for labs tomorrow morning, another EKG and pulmonary function tests and then hopefully discharge.

Praying my next update is from home!

Ali

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