A busy two weeks

Wow...I can't believe it is going to be May this week! The time seems to just fly by.

On Palm Sunday, Alex and I had the opportunity to dance at church (he was Jesus at the Temple and I was Mary). We did this dance several years ago and it is always emotional. On the 15th Alex and I wound up at the hospital for a big chunk of the day as we had an appointment with his sleep doctor and then had to visit the infusion center to try and get his port functioning correctly again. It was a long day, but we were able to bring some smiles to the faces of a few patients with Zoey!

Tuesday and Wednesday were relatively slow before a CRAZY day Thursday! Alex and I started our day speaking at the CMNH kickoff for Cook Children's. We are so honored that the Foundation continues to ask us to share our story to try and put a face to the reason it is important to give to CMNH. Alex did great (as usual) and Zoey was amazing in the crowd of 300 plus poeple. We were able to hear Brrian Jackson speak. He has an incredible story of living with Hope. 

Alex and Brrian Jackson

This sweet man asked to pray with us after the event.

Alex and Lori (one of our beloved Foundation girls)

Karol is such an important part of our lives. Her friendship blesses us immensely.

Jenny works for CMNH and we have come to know and love her over the past 4 years.

After leaving our event, I had to rush to school to help with Maddy's Easter party.  I love to volunteer and watch Maddy with her classmates. 

Maddy with two of her best friends

Maddy and Brooke

Easter Egg hunt

When you find out you get Ice Cream Sundaes!

Our day wasn't over yet! We headed off to an arcade after school for an Extra Life Kickoff. Alex loves to see the guys he gets to game and fundraise with.

Alex holding the Extra Life Shield

Best big brother EVER!

Alex and David

Alex and JR

After the craziness of the week we were thankful to have a quiet Easter Weekend. On Friday, we took some Bluebonnet pictures. i don't have them back yet, but I snapped a few pics while we were waiting. 

We had a few more doctors appointments for Alex this week. All is pretty much Status Quo. Zoey continues to be amazing both with her behavior and her alerting. They become more and more inseparable each day. 

We ask that you continue to pray for our family on several fronts. One is we have had a string of extremely expensive home repairs that have left me feeling anxious about finances. Please pray for me to trust that we will be fine and know that I am not in control. Second, Alex has had several periods where he feels like he is getting sick and will need to go to the hospital. During this same time his port has not been functioning correctly again. Pray for him to feel better and for his line to work. 

Thank you for all the love and support you give our family.

Ali