Alex and Maddy

Sunday, April 7, 2019

Hospital Trip

This past two weeks has not been what we had hoped for. We were gearing up for a trip to Houston to see our Mito specialist and immunologist, but Alex got sick and threw a wrench in the plans. On March 28th, Alex woke up not feeling great. All day he was telling me he thought he might be getting sick. Shortly before 5:00 PM he spiked a fever of 103. We wound up inpatient from Thursday night through Monday. Alex woke up feeling fine on Friday, but the doctors wanted to keep an eye on him/his labs and make sure he was okay. Zoey stayed with us most days, but went home at night. That sweet girl wouldn't leave Alex's room whenever she was home.   Most of this past week was spent recouping and trying to catch up on regular life. For families that don't spend a lot of time in the hospital, it is hard to lose days of your life where you can't do all that you have planned. Coming home you have to recover from the exhaustion, the missed tasks, the financial strain (It is extremely expensive to eat in a hospital). So the next days are spent catching up on rest, tasks and re-budgeting to try and get back to life. I finally feel like I am ready to start this week and not feel quite as frazzled with all I have to do! We did have some positives this week...Zoey did amazing at the hospital and we had a new nurse start that will help us 2 days a week. This morning Zoey went to church with Alex for the first time. She did really well. The Sunday School teachers complimented me on how well she and Alex did. Alex told em the only issue is that Zoey started alerting during a prayer which distracted everyone. OOPS!
This is a very common site in our house

Going for a walk before he got sick

What its like having a 5 yo in the ER!

Feeling Good


Maddy loves when she gets a Prayer Bear

Taking care of her Boy

Alerting

So happy together



On Guard

Protecting her Boy

Maddy walking Zoey out to the car
It is awesome when your best friend joins your ballet class

When your dog gets in your spot, use her as a pillow

My Fashion Diva

Mermaid Tails
Thank you to everyone who prayed for us and continues to pray for us.
Ali

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