Alex and Maddy

Wednesday, December 20, 2017

Weary Wednesday

Today started off rough and got worse before we finally received some good new this afternoon.

Alex and I both slept pretty well. He woke up in a better mood and the day seemed off to a decent start. Pretty soon though they came in and let me know that Alex's Lipase (pancreatitis lab) was higher again this morning and his blood sugar was over 300.  We also were having no signs of gut motility. The pharmacist was the first one so we could brainstorm on the high blood sugar and what adjustments we could/should make to his TPN (IV nutrition) and fluids.

Around lunchtime Dr. Osuntokun decided we needed to do an imaging study to make sure he did not have an obstruction in his intestines. The study involved some contrast and Alex knew he was going to hurt and potentially make him feel sick. There were lots of tears and stressful moments in the time leading up to the procedure. Alex did a great job and luckily there is NO obstruction which is awesome because I would not want to have to send him back to the OR on Friday.

So at least we have answers and know there is no obstruction. Unfortunately that means we are just dealing with really bad motility and we just have to be patient. Dr.Osuntokun feels like it is important to keep the motility med going a few more days even though those are the most likely cause of the hyperglycemia and the increase in lipase levels.

We are checking blood sugars more frequently now and may have to start some insulin tomorrow.

We have had so many people help us in so many ways. We received a very generous donation in the mail. It was anonymous. So to whoever sent us that card. THANK YOU!!!!!

Please continue to pray for Alex's strength, both physically and emotionally.

Ali

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