I have been waiting all day to update because I wanted to be sure we saw everyone and had a plan before I updated. Alex has had a better day from a pain standpoint. He is still on some hefty pain meds quite frequently, but at least he is more comfortable.
From an infection standpoint, he is on 3 strong antibiotics and has not had fevers so things are status quo there. As far as endocrine we have tried lowering his dose of steroids and he doesn't feel fabulous, but not horrible so we are going to try and stick with it.
Things look okay from surgery. He has one small area with some possible pus so we are watching that closely.
Our biggest issue is from GI. Hi GI motility has completely stopped. Dr. O came in and we have switched some meds to IV and added two new meds to try and get things moving. Right now everything is backing up and dumping out his Gtube. We can not attempt any feeds until we get things moving in the right direction. The meds we started are supposed to help the stomach. Once he stops dumping so much we will start a different medication to help his intestines. Unfortunately, Dr. Osuntokun was not optimistic about us making it home for Christmas.
Please pray for Alex's gut to wake up and for his pain level to decrease so we can make it home!
Ali
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