Alex and Maddy

Alex and Maddy

Friday, June 8, 2012

Happy Birthday, Bug!























I cannot belive my Buggyboo is 8! We certainly have not had the 8 years we expected, but I wouldn't change it for anything. I am so thankful for every minute with this precious boy who brings a smile to my face everyday. He is blessed with such a gift of joy! What a year we have had. We have made some strides this year in healthcare that give me hope for the future. We started EPI-743 and saw a 50% increase in function in his mitochondria in his brain. We started  IVIG  and have seen a major decrease in illnesses! We are so excited about these changes that have made such a difference! I also promised I would tell you about our surprise.... We decided to throw financial caution to the wind and spend 1 night at Great Wolf Lodge. We will spend a night and enjoy the water park and other attractions! As hard as it was to put out the money, I am so excited for my boy to get an awesome night of pure fun!

My sweet Buggy-

God blessed me 8 years ago when he decided to make me your Mommy. You make me so happy. I am so proud of you. You always find fun in everyday. No matter what you have to go through you never get mad or upset with me. You always smile and hug me and tell me you love me. Everyone you meet falls in love with you. You light up every room. You are so kind, smart and funny. I love you more then anything.


Love, Mommy

2 comments:

  1. Happy Birthday Alex!!! Enjoy your night at Great Wolf! I hope you have a wonderful birthday! Lots of love....from New York!

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  2. Happy Birthday Alex!! You will have an amazing time at Great Wolf!!

    ReplyDelete