I figure I owe you an update though!
Alex and I are back in the swing of our "normal" schedule. We are 2 weeks into our new school curriculum and we are both REALLY enjoying it. It is much more well rounded (vs history based) then our past curriculum. I think Alex likes the different subjects and not having it be so monotonous. He says, "its fun and I really like computer, science and reading". We are also gearing up for another year of Cub Scouts. Bug is really looking forward to seeing all his friends from his Den again. He is also excited to sell popcorn again.
Alex and I leave next Monday (August 29th) for California to start the trial. We are both excited and anxious. We would appreciate some extra prayers for safe travels and for Buggy to do OK with the medication. We will be there until Friday undergoing testing and appointments. We are hopeful to meet up with a few good friends while there as well.
On a not so bright note....Buggy continues to struggle. He is losing weight and having quite a few days where he isn't feeling great. The Doctors and I have been in close communication and we are all relatively sure we know the cause of the issues. Once we are home from california we will most likely be making a trip to Houston to try and figure out a new plan. We had thought we would be heading there before CA, but it was decided we shouldn't rock the boat before going to Stanford.
Thank you for your continued love and support.