As you can see we have been having fun in the pool! I will let the pics speak for themselves. We also got Alex's 7 year pics done. I posted a few so you could see a preview! Look closely, something is missing!
The next few weeks are going to be CRAZY!!!!! Sometime next week Alex will be admitted to the hospital in Houston. There is some concern for how skinny he is and how puny he has been acting. We will be inpatient for 4-5 days while we try and come up with a plan to get him back to baseline.
Then on August 29th, Alex and I will fly to California to begin the new medication. We are so thankful to the team at Stanford and in Dr. K's office for working so hard to get Alex in the trial and set up so quickly. We will be at Stanford for 3 days (and travelling for 2). In that time Alex will have a clinic appointment, a heart eval, 2 brain scans and get his first dose of medication. Assuming he does well we will fly home on Friday and continue the medication. The next few months will be a whirlwind of travel back and forth between home, Houston and california, but we are so hopeful we will see good results from this medication and it will all be worth it.
Thank you to all who continue to pray so fervently for us.