Alex and Maddy

Alex and Maddy

Wednesday, August 3, 2011

Not Feeling Great, But Still Having Fun

I haven't updated in a week so I thought I would give a quick update on the last few days and some pics!


Alex is still not himself! He has been pretty puny. Mostly wanting to stay in bed and watch videos and play his Nintendo DS. Mimi and I have been "forcing" him to get out and have some fun the last few days with lots of quiet time in between. We have seen friends, been swimming and riding go-karts. I'll let the pics tell the story.






Alex and his Cousins





Want some Seaweed?




Sand Monster




Beach bum








At the creamery with Mimi and PopPop




Mommy's Angel





Buggy and Cayman







PopPop and Bug leading the Race





Buggy DID NOT like driving himself!




Win #2




Where Bug has spent most of his time!




In some other exciting news....I had mentioned a clinical trial for a new medication they are using with some Mito patients. We just got word today that Alex has been accepted into the trial. Thank you for all who prayed for us. We are very hopeful for what this may mean for our Bug!




Ali
























































































































2 comments:

  1. Wow, what exciting news. I hope and pray that this new medication WORKS MIRACLES!!!! Poor Alex looks like he has lost a lot of weight. Praying this new med helps him gain so weight too.

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  2. Praying the clinical trial is truly a miracle for Alex!

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